Diet Changes for Food Allergies, Autoimmune Diseases and Why My Kid is Tough

by Leila on February 10, 2012


This week we went to UCLA Medical to try to get some answers for my daughter’s recent autoimmune flare ups. We have some new directions… but no solid answers.

That’s the thing with chronic illnesses and autoimmune issues. Sometimes there are no answers.

We know what is going on with her body but we don’t know why.

And that is the part that sucks.

Without knowing why we can’t know how to fix it.

So, we shoot in the dark.

What we do know is that there is something causing extreme constipation and then extreme diarrhea. Her chronic urticaria (hives) are flaring up again. Her muscles, joints and bones ache. She is getting dizzy a lot, fatigued, doubled over in pain and sleeps a lot more than usual.

Not exactly what a nine year old girl is supposed to be experiencing.

All we can do is stay positive, keep fighting for answers while she does lab work, takes xrays and a whole ton of random tests and an ever changing diet.

Yes, that was all for her. That is a typical amount too. This is one of many reasons why she is tough.

We are running more RAST (radioallergosorbent test… uh, basically determines what substances a person is allergic to) and we will be modifying her diet accordingly. This is not unknown to us. When she was an infant and I was nursing her I went on the elimination diet. Started with a handful of foods that I ate and every week I introduced one new food.

That was the best way ever to lose ALL the baby weight.

She was allergic to over twenty things. It was rough. I was on her diet so I know. Until the last few years her diet has been very limited… but she started getting foods back.

This was amazing! She was able to taste corn, berries, salmon, tuna, pork, peanuts, cashews, pistachios and OMG… WHEAT! These were huge milestones for us.

I always aired caution that she could become allergic to these things again. It changes. We hoped for the best and I thought we were prepared for the possibility of losing those things again.

Well, we are losing wheat. Hopefully temporarily… but could be long term.

I say we because I told her I will be going on this new strict diet with her. I want her to feel supported during this transition. So, screw you wheat! We didn’t want you anyway! Fluffy pancakes taste like maple syrup covered crap!

Okay we did really like having wheat but I’m trying to be cool about this… so right now… Wheat can piss off.

This is her piss off wheat face! Actually, this is her "Mommy, stop taking pictures now" face.

There is a possibility that her system just can’t handle some of these foods that she wasn’t able to eat before. Corn, wheat, nuts and other substances are hard for the body to digest. Even if she doesn’t have a true allergen to these things she has to eliminate many foods from her diet to help her body digest properly.

We discovered in the fall that her body digests food at an alarmingly slow rate. This was after taking a test that involved her eating food with nuclear particles and her digestive track was scanned every 10-15 minutes.

This was rad!!!

Anyway, the food didn’t move very fast at all.

Basically what we are looking at is that her body digests slowly, it gets backed up easily, then shoots out with gusto, all of this flares up her autoimmune disease, causes extreme pain/fatigue with little relief.

Fun stuff right?

No matter what the dietary changes are we will make the most of it. Hell, I need to lose some more weight and the healthiest I ever felt was on her highly restricted diet. There are positives to every seemingly impossible situation.

And we are going to ninja kick the shit out of this obstacle again because we’ve already been there and done that.

About Leila DontSpeakWhinese

Leila, aka The Ninja, is the advocate for all things not whining. Parenting is fun when everyone stops b*tching! She is the Mom of a big blended family of four awesome kids. They ninja kick through life together. Oh and she is a total jackass.

{ 7 comments… read them below or add one }

Rubyspikes February 10, 2012 at 8:55 pm

OMG you are both amazing! The attitude is inspiring. You go girls!

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Leila February 11, 2012 at 12:02 am

Thank so much! I don’t know what other kind of attitude to have… being miserable doesn’t seem too fun so we gotta find the fun and do what we can! :D

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Sarah @ The Fence February 10, 2012 at 10:29 pm

You two are seriously awesome! Your daughter is a heckuva kid to taking on so much with such gusto. And you… are the bestest Mama on the planet… clearly, totally meant to be matched up with her! I love it!
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Leila February 11, 2012 at 12:01 am

Thank you so much Sarah! That means a lot… I’ve heard that a lot lately… that her and I were meant to be matched up. Can’t imagine our lives being any different!

I never know what to say to those kinds of compliments… I think at best I’m an okay Mom who is trying to make the most out of what cards we were dealt with :)

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Junebug February 11, 2012 at 4:02 am

Bravo for having such a fantastic attitude through all of this! I couldn’t imagine the pain of watching your poor daughter go through such trails so young. You are an amazing inspiration for how to be a mother by giving up things with her as support. Beautiful! My support is to say Wheat sucks donkeyballs!

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meleah rebeccah February 12, 2012 at 5:32 pm

You’re both totally-super-awesome!!

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suki March 11, 2012 at 12:34 pm

you’re such a super mommy. :) so awesome getting to hang out with you over the last few days! until we meet again!
suki recently posted..Wine and Love #30My Profile

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