That’s the thing with chronic illnesses and autoimmune issues. Sometimes there are no answers.
We know what is going on with her body but we don’t know why.
And that is the part that sucks.
Without knowing why we can’t know how to fix it.
So, we shoot in the dark.
What we do know is that there is something causing extreme constipation and then extreme diarrhea. Her chronic urticaria (hives) are flaring up again. Her muscles, joints and bones ache. She is getting dizzy a lot, fatigued, doubled over in pain and sleeps a lot more than usual.
Not exactly what a nine year old girl is supposed to be experiencing.
All we can do is stay positive, keep fighting for answers while she does lab work, takes xrays and a whole ton of random tests and an ever changing diet.
We are running more RAST (radioallergosorbent test… uh, basically determines what substances a person is allergic to) and we will be modifying her diet accordingly. This is not unknown to us. When she was an infant and I was nursing her I went on the elimination diet. Started with a handful of foods that I ate and every week I introduced one new food.
That was the best way ever to lose ALL the baby weight.
She was allergic to over twenty things. It was rough. I was on her diet so I know. Until the last few years her diet has been very limited… but she started getting foods back.
This was amazing! She was able to taste corn, berries, salmon, tuna, pork, peanuts, cashews, pistachios and OMG… WHEAT! These were huge milestones for us.
I always aired caution that she could become allergic to these things again. It changes. We hoped for the best and I thought we were prepared for the possibility of losing those things again.
Well, we are losing wheat. Hopefully temporarily… but could be long term.
I say we because I told her I will be going on this new strict diet with her. I want her to feel supported during this transition. So, screw you wheat! We didn’t want you anyway! Fluffy pancakes taste like maple syrup covered crap!
Okay we did really like having wheat but I’m trying to be cool about this… so right now… Wheat can piss off.
There is a possibility that her system just can’t handle some of these foods that she wasn’t able to eat before. Corn, wheat, nuts and other substances are hard for the body to digest. Even if she doesn’t have a true allergen to these things she has to eliminate many foods from her diet to help her body digest properly.
We discovered in the fall that her body digests food at an alarmingly slow rate. This was after taking a test that involved her eating food with nuclear particles and her digestive track was scanned every 10-15 minutes.
This was rad!!!
Anyway, the food didn’t move very fast at all.
Basically what we are looking at is that her body digests slowly, it gets backed up easily, then shoots out with gusto, all of this flares up her autoimmune disease, causes extreme pain/fatigue with little relief.
Fun stuff right?
No matter what the dietary changes are we will make the most of it. Hell, I need to lose some more weight and the healthiest I ever felt was on her highly restricted diet. There are positives to every seemingly impossible situation.
And we are going to ninja kick the shit out of this obstacle again because we’ve already been there and done that.
About Leila DontSpeakWhinese
Leila, aka The Ninja, is the advocate for all things not whining. Parenting is fun when everyone stops b*tching! She is the Mom of a big blended family of four awesome kids. They ninja kick through life together. Oh and she is a total jackass.